You're invited to participate
in this survey exploring the impact, if any, of health literacy on emotional health in people living with multiple sclerosis (MS). The purpose of this
survey is to help clinicians and health educators determine whether a person's knowledge of MS can promote well-being. It will take about 25-45 minutes to complete, depending on how many symptoms of MS you are experiencing. In addition to basic demographic, MS-related health, and emotional health questions, the survey asks about your knowledge of interventions for managing MS symptoms, your beliefs about MS, and how you educate yourself about MS.
This research will be used to improve
health education for the multiple sclerosis community as well as to raise awareness of multiple sclerosis health issues. Through your participation I hope to understand what, if any, knowledge gaps people with MS may have about MS, and in particular, if there seem to be any knowledge gaps that negatively affect a person's emotional well-being. I hope that the results of the survey will be useful in creating health education materials that provide information that is needed and that are accessible to people in the ways in which they indicate they access information on MS. I also hope to share my results by publishing them in scientific journals and by presenting them at professional conferences. I hope that the results of this survey will help professionals better work with people who are living with MS by knowing what information people with MS may not have been receiving and that may be critical to their emotional well-being.
There are no known risks related to participation in this study although
some of the questions asked are personal. Your responses will not be linked to
your identity. There is no direct benefit to participating in the study. The alternative would be not participating in this study. Any information that could possibly identify you will not be shared with anyone outside of this study's research team which includes Lara Stepleman, Ph.D., Rebecca Floyd, Ph.D., Elizabeth Devon Eldridge, Ph.D., Rebecca Howell, B.S., B.A., and Bianca Hughes.
I will do my best to keep your information confidential. All data is stored in a password protected electronic format. To help protect your confidentiality, the surveys will not contain information that will personally identify you. The results of this study will be used for scholarly purposes only and may be shared with Augusta University.
Some questions this survey asks are
personal or sensitive in nature. Should you feel you need to consult a mental health professional at
any time please contact a 24/7 crisis hotline, at
1-800-273-TALK (8225). If you are a veteran press 1 after dialing this number.
We hope you take the time to
complete the whole survey, however, you may skip any item(s) you prefer not answer.
Your participation is voluntary and there is no penalty if you do not
participate. However, we encourage you to complete the survey in its entirety
because this will give us the best
chance to improve health education materials for people with multiple sclerosis. If you choose to participate you will be eligible to enter a drawing to win one of four $25 gift-cards. You will be asked if you would like to enter the drawing at the end of the survey. If you enter the drawing for the prizes, please know your contact information will not be linked to your survey responses.
If you have any questions or concerns about completing the questionnaire, about being in this study, about being in the raffle, or to receive a summary of the findings, you may contact Dr. Lara Stepleman at 706-721-7969. If you have any questions or concerns about the "rights of research subjects," you may contact the IRB office at 706-721-1483.
Lara Stepleman, Ph.D.
Professor of Psychiatry & Health Behavior
Director, Educational Innovation Institute
997 St. Sebastian Way
Augusta, Georgia 30912
Medical College of Georgia
Clicking on the "agree" button below indicates that:
- You have read the information above.
- You voluntarily agree to participate.
- You are at least 18 years of age or older.
- You are diagnosed with multiple sclerosis (MS).
If you do not wish to participate in this study, if you are not 18 years of age or older, or if you have not been diagnosed with MS, please decline participation by clicking on the "disagree" button below.